All of this in less then a year! I was at my wits end and it was just not getting any better! 2004 is right around the corner, do you think I even had a good New Year. Nope! It felt like I was digging my grave deeper.
I remember waking up each day and taking around 18 to 20 different medications and pain killers, sleeping all the time and just plain sick. I was so sick that I was not spending that much time with Will, Kariann, Kohen, my family and friends. I could not even go outside because I would turn bright red from the sun, even through my clothes. I just wanted everything to go away. Everything! I knew I was hurting everyone, but no matter what, they stood right there by my side and supported me.
In August I had another laparoscopic for scar tissue. In the middle of all this I develop a red butterfly rash on my face. Come to find out that my blood work came back positive for Lupus. Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. Not to mention how many migraines I get each week since I was a little girl.
It was now October, and I had to do another colonoscopy. As I am getting a check up with my doctor for Lupus I am now told that I also have Fibromyalgia syndrome. This is a widespread musculoskeletal pain and fatigue disorder for which the cause is still unknown.
I was resting one afternoon when I woke up with severe head pain. It felt as if something burst right above my forehead. I ended up going to the hospital they ran every test on me that you can imagine. I ended up having a spinal tap normally they stick you once, but they stuck me a few times! I was down on my back for about a week. I was in so much pain, that I had to go back to the hospital. They took out too much fluid and had to take blood from my hand and injected back into my spinal cord.
Keep in mind that during all of this I am still battling my divorce! It has been a long road. He calls once in a while and sees the kids once in a while! So not only do they see their mother sick. They also see their father slipping away.
I finally got a job after being out of work for two years. I was finally hired by my attorney. Go figure! I was still standing in my hole, looking up to see the ladder, trying to figure out how I was going to get out of this rut. November came, and I had another stress test done. That December I honestly thought I was going to die. I had gotten one of my severe migraines and nothing was working. I went to the hospital and immediately they started IV fluids and gave me pain medication. I remember lying there all alone and feeling sleepy. The next minute I feel like I have to go to the bathroom right there. I can feel my breathing becoming very shallow. My heartbeat was slowing down. I remember hearing the beating of my heart in slow motion. I felt like I just had the life sucked right out from me. I called for help, but no one came to me. Finally when someone did they put me on a heart monitor and my heart rate was below normal. As I laid there in the bed all alone I could only think of my children, Will, my family and friends. I was not going to give up. Then all of a sudden immediately my heart rate started increasing above normal. I was a walking time bomb just waiting to explode. I came home and I was so scared and so upset that I wanted nothing more then to give Kariann and Kohen hugs, kisses and to hold them. Most of all to be in my baby’s arms… Will held me so tight and from that day on I had a very difficult time with my heart and sleeping!
The roller coaster ride did not end there. Two weeks after that, while I was at work, my heart rate jumped so high that they had to call an ambulance at my new job and I was once again I was back in the hospital. I was diagnosed with Tachycardia. Now, I have been diagnosed and I knew how to fix the problem. A new year was right around the corner. What a New Year to remember! Will and I spent New Year’s Eve in the hospital because of me having chest pains. It was several hours before I could leave! Once again I managed to ruin an event because I was sick.